Writing and Creative License: Knowing an autistic isn’t the same as being autistic

A rose by any other name and with any number of thorns is more pleasant to deal with than this book was

Pink rose being sniffed by the nose of a puppy.
Pink rose being sniffed by chihuahua-dachshund pup

In the community of writers, there is an ongoing debate about ‘#ownvoice’ writing vs. ‘writing as a creative act’, e.g. a writer’s creativity should not be shackled by their lack of personal experience. Knowing that I have little positive to say about a book that someone else labored long and hard on is something I’ve put off for months. But this is also a cautionary tale for writers about why we all need to be careful about trying to tell other peoples’ stories.

A cute puppy – Winnie – that I would rather spend time with:

Chihuahua-dachshund puppy.

There’s a great deal to be said for literary license, that allows us as creatives and writers to explore experiences that might be adjacent to what we’ve lived but aren’t our actual experience. Most writers, for example, will write both male and female point-of-view (pov) characters, while most writers will have lived from only one of those pov. . . and generally we as an audience are fine with that.

A day lily and 4th of July Rose that I would rather look at:

Orange day lily and red and white rose.

At the same time, I personally have read male writers’ women and thought, “They really don’t get it.” We – as writers – should still be allowed to explore different pov characters. And when we do, we also have to accept that we may be criticized for our take, particularly when we are writing from a pov rather far removed from our own. And when that pov represents a historically marginalized community . . . lots of room for trouble.

What is most frustrating for members of that marginalized community though, is when a book featuring ‘their’ pov is written badly by someone who is not a member of the community, yet does very well commercially. That is basically salt in the wound.

Our current case in point, The Maid.

Cover of The Maid by Nita Prose.
The neurotypicals are loving this one . . .

To summarize what at least one person has commented, Publishers and writers seem to think if they don’t name the disability, then when they are called on the inaccurate portrayal they can say, ‘well we never said the person was x’.

There are stereotypical social portrayals of autism which invariably include Obsessive Compulsive behavior, including fascination with a fixed topic; an inability to decode social norms and expectations; naivete, particularly compared to same-age peers. Throw these all onto one character and people are going to read her as autistic.

Someone who is not autistic, writing an autistic pov is fine in theory. But when the portrayal turns the character into a puppet who is manipulated (that’s an autistic reading, not at all what the writer was going for) by the neurotypical characters who are ‘helping’ her – by having her rehearse lines to say, saving her when she’s in legal trouble, and caretaking her because she is portrayed as unable to be truly independent – well, don’t be surprised when autistic readers are offended.

Neurotypical readers, however, seem to generally love this story. They are amused by the ‘quirky’ pov, while being able to identify with her saviors who swoop in at key moments. They are not relegated to being the character who is incapable of orchestrating her own narrative. She’s the woodchip, they’re the waves who move her.

A Collie, whose barking I would rather listen to:

Collie dog standing outside on a summer day.
Close up of collie dog

Note: because this whole endeavor has cost me a lot of spoons (please lookup spoon-theory if this is not a familiar term) I have randomly included images in this post that make me much happier than the topic itself has.

Neurodivergent readers: This is going to be turned into a film. And we all know the likelihood of them choosing a neurodivergent actor to play Molly is as low as it is likely that Ballantine Books will follow this book up with several written by #actuallyautistic writers.

For the Autistic in the Virtual Room

Free image: Pixabay, PIRO4D

Back in 2018 I created a brief survey to begin collecting bare-bones input from other ASD folx about what they were finding most challenging in life.

As a writer and academic, this is a topic that I would eventually like to address in a book that would hopefully help ASD folx and their communities (i.e. the rest of the world) by making it clearer the prejudices and struggles those of us on the spectrum face in day to day life. At the very least I’d like to create a conversation starting point amongst those who like some data, not just anecdotal evidence. To be clear, I value the stories of those with lived experience. But part of the audience would be made up of those who value data points.

I’d left the survey open and knew it was still hanging out in the virtual-verse. Then I got a notice that after several years someone had taken the few minutes to fill it out, adding another voice to the experiences being collected. And it occurred to me that it would be useful to keep adding voices to that survey and that by posting a link here, we might find a few more folx willing to share.

Survey: https://www.surveymonkey.com/r/NJTC92V

Responses to one of the central questions of the survey as of April 30, 2022.

This is a anonymous survey although respondents have the option of leaving an email address if they are willing to be contacted in the future.

I’d be interested in knowing (comment section) what topics you think should be covered if one had an opportunity to discuss being neuro-diverse with neuro-typical people?